FAMY SKELLEFTEÅ
894701-6674ActiveAssociation supporting those affected by hereditary amyloidosis diseases.
Non-profit Associationfamy.se
Oversikt
- 1–4
- Ansatte
- Ukjent
- Omsetning
- 1992
- Grunnlagt
Nøkkelbeslutningstakere
Ewa-Britt Norberg
Secretary
Per-Erik Marklund
Treasurer
Ann-Christin Järnelöf
Board Member
Torbjörn Wahlberg
Vice Chairman
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Beskrivelse
FAMY Västerbotten is the Association for Hereditary Transthyretin Amyloidosis (ATTRv), locally known as "Skelleftesjukan," and cardiac amyloidosis. It was established in 1983 and was the world's first association dedicated to this group of diseases. The organization functions as a national non-profi...